AAHRPP

Association for the Accreditation of Human Research Protection Programs

AAMC

Association of American Medical Colleges

ACC

American College of Cardiology

AHIMA

American Health Information Management Association

AHRQ

Agency for Healthcare Research and Quality

AOD

accounting of Disclosure

ASCO

American Society for Clinical Oncology

Ba

Business Associate

cabig

Cancer biolääketieteellinen Informatics Grid

CCW

Chronic Conditions Warehouse

CDC

Centers for Disease Control and Prevention

CMS

Centers for Medicare & Medicaid Services

DES

Diethylstilbestrol

DUA

Data use agreement

ELSO

Extracorporeal Life Support Organization

EPHI

Electronic protected health information

ephr

electronic personal health records

EU

Euroopan unioni

FDA

food and Drug Administration

Foia

freedom of Information Act

Gao

Government Accountability Office

Gina

genetic information Nondiscrimination Act

HAS

Health Assessment Survey

HEW

U. S. Department of Health, Education and Welfare

HHS

U. S. Department of Health and Human Services

HIC

Health information custodians

HIPAA

Health Insurance Portability and Accountability Act

HIT

Health information technology

HMAC

Keyed-hash message authentication code

HMO

Health maintenance organization

HMORN

HMO Research Network

ICMJE

International Committee of Medical Journal Editors

ICU

Intensive care units

INTERMACS

intergency registry for Mechanical assisted circular support

iom

Institute of Medicine

IPC

information and Privacy Commissioner

IRB

Institutional Review Board

JHU

Johns Hopkins University

NAACCR

North American Association of Central Cancer Registries

NCAB

National Cancer Advisory Board

NCI

National Cancer Institute

Ncvhs

National Committee on Vital and Health Statistics

NIH

National Institutes of Health

NIST

National Institute of Standards and Technology

NPDB

National Practitional Data Bank

NTD

neural tube birth deficits

OCR

Office for civil rights

OECD

organisation for Economic Co-operation and Development

ohrp

office for Human Tutkimussuoja

PCP

kumppanit lapsimatkustajien turvallisuuden puolesta

PDA

henkilökohtainen digiassistentti

PHI

in HIPAA, suojattu terveystieto; in PHIPA, personal health information

PHIPA

Personal Health Information Protection Act

PRIM&r

Public Responsibility in Medicine and Research

Reb

Research ethics board

SACRP

Secretary ’ s Advisory Committee on Human Research Protections

selenium and Vitamin E Cancer Prevention Trial SMOG

Simple Measure of Gobbledegook

Ude

unique data elements

unos

United Network for Organ sharing

va

U. S. Department of Veterans Affairs